This is our life. The craziness. Good, bad, and indifferent we are in this together.
Monday, July 11, 2011
Shameless Plug
OK, OK I know shameless plug here but I actually got on babbles list (shocking I know) you can vote for No Guile here. I don't expect to get into the top 25 but hey just to be on the list.
Friday, July 8, 2011
ugg I DON'T CARE
Ok so I haven't been around for bit. Really I got nothing. Been busy with kids and my school. One thing that has driven me nuts and I'm sure I have probably written about it before is all these stupid studies that show some correlation to autism. I mean really what next, I'm sure we could all get together and do a study that shows if you drive a ford your child will be more likely to have autism. Sadly people would believe us.
The craziest article I read this week was someones take on a study. They said that this study made them more fearful of vaccines. read it here. Really a study that didn't even look at vaccines made you more fearful. sounds like fear mongering to me.
When are we going to stop posting all these studies as news. Untill there is concreat evidence stop. There are at least 5 a day if not more posted on facebook that all it is is correlation not fact.
When it comes down to it I don't care what causes autism. Can we take all this money that is being spent on studies that are not finding anything and maybe find ways to help those with autism.
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I want this truck! No other reason for this pic. |
When are we going to stop posting all these studies as news. Untill there is concreat evidence stop. There are at least 5 a day if not more posted on facebook that all it is is correlation not fact.
When it comes down to it I don't care what causes autism. Can we take all this money that is being spent on studies that are not finding anything and maybe find ways to help those with autism.
Sunday, July 3, 2011
Wednesday, June 29, 2011
The Long Time
Waking on Every Moment.
Worrying weather your child made it home.
It takes a long time to know
Nothing is ever certain or set in stone.
Comforting on a seconds notice
Judging the actions.
The long time comes but will go.
This was written by a friend of mine Victor years and years ago inspired by Roger. Visit him here
Worrying weather your child made it home.
It takes a long time to know
Nothing is ever certain or set in stone.
Comforting on a seconds notice
Judging the actions.
The long time comes but will go.
This was written by a friend of mine Victor years and years ago inspired by Roger. Visit him here
Tuesday, June 28, 2011
What Are You Sorry For?
The one thing I cannot get used to is people's reactions when they hear your child has Autism. The most common I get is but he doesn't look like it. Still don't know what one with autism is supposed to look like, I've decided I'm going to start answering and you don't look like a idiot see how they like that.
The very close second comment is I'm sorry. What the heck are you sorry for. While yes he does struggle with some things this is not a death sentence. Given a magic pill to fix it, really I don't know what I would do and that's not an option so no since in going over that can of worms. Maybe it's because I have had worse options on the table.
This is the child who is not supposed to be here. Let me go back a little and explain, anything and everything that could go wrong in my pregnancy and delivery did. Long story short ended with emergency c-section me in icu and not having a clue what had happened. Finally the next day a med student asked if I knew what happened when I said no he said to put it bluntly 5 more min and we would have lost him 10 min and you both were gone that's how close you guys came.
So when you say I'm sorry to someone first off your really not second you don't know where they have been.
Even with the struggles he faces. I'm not sorry. There's nothing to be sorry for. He is a kid and deserves to be treated as one.
The very close second comment is I'm sorry. What the heck are you sorry for. While yes he does struggle with some things this is not a death sentence. Given a magic pill to fix it, really I don't know what I would do and that's not an option so no since in going over that can of worms. Maybe it's because I have had worse options on the table.
This is the child who is not supposed to be here. Let me go back a little and explain, anything and everything that could go wrong in my pregnancy and delivery did. Long story short ended with emergency c-section me in icu and not having a clue what had happened. Finally the next day a med student asked if I knew what happened when I said no he said to put it bluntly 5 more min and we would have lost him 10 min and you both were gone that's how close you guys came.
So when you say I'm sorry to someone first off your really not second you don't know where they have been.
Even with the struggles he faces. I'm not sorry. There's nothing to be sorry for. He is a kid and deserves to be treated as one.
Friday, June 24, 2011
one step forward and 2 back
I FINALLY found an OT for Roger. Insurance will pay yay (happy dance) and the wait list is less than 3 weeks. Most of you know how amazing that is in itself. The other 3 lists we are on are over 6 months long. While I finally get this worked out his speech theripist has informed me that she is switching clinics at the end of July and at that point we will be put back on the wait list. They don't know when a replacement will come in for her and what that persons caseload will look like so at the end of July we will be back at the end of an insanly long wait list.
I do believe the place that will be doing his OT does speech as well, I will find out and if so maybe move him there. I mean if I have to change therapist anyways.
Sometimes it just seems like once we get one thing worked out something else falls apart.
I do believe the place that will be doing his OT does speech as well, I will find out and if so maybe move him there. I mean if I have to change therapist anyways.
Sometimes it just seems like once we get one thing worked out something else falls apart.
Wednesday, June 22, 2011
Computers
I have taken the kids computer away. Not because they did anything wrong more because that's all they do. Am I setting myself up for meltdowns yeah I know I am, but not only the little ones but Roger needs to learn to entertain themselves another way. You can't always have a screen in front of you. While the little ones will go play outside or something Roger will read a book. So far day two and no meltdowns from Roger yet. Besides at some point this summer I am going to have to take it in and have it fixed which means it will be gone for at least a week. Motherboard is crap along with the hard drive oh and the keyboard is losing keys. It would almost be cheaper to buy a new one but i just don't have the money for that and Roger will need it by the time he goes back to school so maybe if I fix one part at a time we will be able to pull it off.
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