Tuesday, July 12, 2011

Looking Back

I was looking back at some of my blog postings and now some of it I would change.  One of my first posts d-day first off I would change the name of that one it seems so dreadful and depressing. I associate d-day with a war and this is not a war. I had also said I thought I wanted to be wrong about believing he had autism but in reality is was such a relief to be right and know what was going on.  In all honesty it has been great for Roger the diagnosis helped him feel better about himself that he wasn't just some weird kid there was a reason for it.  The best day of the past year has been when he has said I have autism and thats not a bad thing just means I think differently.
I still could care less what causes it or for a cure I would not change my child meltdowns and all. The treatments we do get for him are not an attempt to rid him of autism but rather to help with his communication and executive functioning. Overall I still want him to be a kid. I don't want to spend a million hours chasing down crazy science and the result of my child spending his whole childhood in a doctors office.  Some of the best therapy has been just being in the real world. I am not a bad parent for wanting him to be a kid. He's not some science project for people to poke and prod at we had enough of that. We will go for the therapy that benefit him but the others we will skip.
Anyone else in this position should remember in Roger's words Autism is kinda cool, I don't want to be like everyone else.  Do what you know is right for your child don't just follow the hype (some of that stuff is extremely dangerous by the way). Support the organizations you believe in once again you don't have to follow the crowd. I'm open in as I learned about autism speaks I do not support them. I don't like the science, the politics, or the way their money is spent. But that is me I do not expect anyone to just go on what I say do your own homework check things out.


  1. Very cool. Thanks for sharing. I relate to my opinions about autism changing (evolving) over time, with experience. Glad you are in a good place!

  2. I've been looking back too- just wrote about how being an "autism sibling" really set the course for the adult I would become.

    Thanks for writing.