Need More Time

We need more time in a day around here.  I saw Rogers primary today and got the referrals/orders that I needed. (i.e. Occupational Therapy and ABA). What I was not expecting was three times a week ot, and up to 15 hours a week of ABA.  This is added to 1 hour of speech a week plus the psychologist so we are looking at possibly (I say possibly because I doubt insurance will approve 15 hours a week I know we will get a min of 8hrs) 20 plus hours a week therapy along with starting a new job.

Yep I am going back to work in a little over a week full time. I'm going to have to get people to work with me. When it comes down to it therapy is at the top of the list but we also need the income.

Strong

Memory Monday 5/30

I'm a co-host for the blog hop, Memory Mondays!
Here, you are invited to share a favorite memory. Simply create a new blog post about the memory and leave us a link, telling us where to go. This can be a favorite story, favorite picture, favorite home  video... you name it.  Nothing specific, you tell us what means a lot to you!

Here is my memory:

The memory this week is Rogers 24 hour EEG.

The couch mom got to sleep on. Looks comfortable don't it.

Getting all wired up for his EEG

This is what they call the happy hat at the hospital to cover the wires.

So there is my memory,  now time to link up!

<a border="0" href="http://modernmomredefined.blogspot.com/" target="_blank"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpw6zQ-7LYn5XHJHtaHu-SLs7xYHberny1h3pCIMZWnrIJUiaTr2wb0WZiEhxtCp1jhHg2OyQgm2EtACRRT26UpocUVl7XnKitsm7ddUuYu1k0dfxakuMeCnN3GuBThrZihGUUY2wofhs/s200/Memory+Monday+Hop.jpg" /></a>

The weekly host is ME!

Please be sure to follow the hosts! Both Kelsi at Modern Mom, Redefined, and I will go through to follow you back. If you would like to be a guest, let Kelsi know. Also, don't forget to let the host know that you are following them and how. This allows us to be able to return the favor! 

As this hop is new, it would be greatly appreciated if you post the button somewhere others can see it on your blog and, if you have a blog hop directory, adding this hop to the Monday section would help tremendously.  Thanks a bunch!!


I hope you have a fantastic week, and link up again next Monday at Modern Mom, Redefined!!!

long day

Yesterday was a long day.  First IEP meeting those are always fun. Only had to yell once. Please do not tell me everything is a team decision blah blah blah repeatedly I eventually will go off.  It went something like excuse me I am a member of this team and what I have to say should be looked into. This is my child and I know him better than anyone in this room. That stopped the stupid this is a team decision crap. Hey its not the best IEP but it works. If you have ever sat through an IEP meeting you know afterwards you are done. Lets just say I didn't have to picked up from the police station good right?
A couple of days ago we started having trouble with the internet so I called the cable company and they sent someone out.  Well I forgot he was comming last night oopppss at least we were home.

What started as a bad cable modem needing replaced turned into the whole house being rewired.  Of course while the TV is going in and out while the rewiring is being done there has to be something on that Roger just must watch now.  Had he shown up while kids were in school it just would have been the modem.  Lucky for me new netflix movies had come in so I could distract with the DVD player instead.
But now everything is fixed and my internet is up and running a lot faster than it ever has. Thanks cable guy.

IEP DAY

IEP day! Need I say more?

Lucy

3yrs old. She won the pig nose at the pig races at the pumpkin patch.

I guess I should give you some background on Lucy. She is 6 going on 7. She also did not talk until she was almost 5. Thanks to a really good school district and head start they got speech involved at age 3 and got her talking.  She did see a developmental pediatrician when she was in kindergarten (she talked by then just not much) who just said oh she just lets her brother talk for her, she will talk when she feels like it. Her pediatrician had sent us there because he though she might be dyslexic. The developmental ped really didn't address that or much of anything. Only thing she said was ahh she's probably borderline autism (many of the traits present then are no longer). In other words she has some autistic traits but not enough for a dx. Then again if you look hard enough we probably all have traits.
Fast forward to the end of first grade. There's something not right with her. She has friends, she does well in school but she doesn't seem to get whats going on around her all the time. Is this normal? I thought it was just me until the other night hubby said somethings not right with her. The school hasn't said anything they thought dyslexic in kindergarten but we just rode it out a bit and that has worked itself out, she has no signs of it now.
I'm trying to decided now do I make the appointment and take her in to have her tested or do we just see how things go?

bubble girl

age 6 being silly wearing a duck costume

Appointment Fun

Hey I call it fun when I make 4 appointments at once. First I had to make Roger's follow up in cardiology (they want to watch that extra vein in his heart) that's once a year. At least the hospital knew who I had seen before I have long since forgotten that was a year and about a hundred doctors ago. That one was easy.
Then I move on to neurology, that was really easy he's established and I knew what month I even got options for appointments here.
Now we move on to audiology. I guess he needs a hearing test of some sort something to do with auditory processing. Anyways that was a transfer and transfer again on the third transfer they finally said why do they keep sending you to me? I don't know I just thought y'all liked the transfer button.

After audiology I moved on to occupational therapy. The multiple transfers from audiology was nothing compared to OT I was transferred between the same two clinics no fewer than 9 times prob more, finally someone that can set an appt comes on and guess what I need a referral. This would have been nice to know oh I don't know 20 min ago before you transfered me all over the state.
So now I have to make an apt with our primary to get an OT order just to be put on a 6 month ot wait list. yippee.

yep that's what i look like after all them phone calls.

see that was fun wasn't it.